We collectively create accessible, enjoyable, freely adaptable respiratory health knowledge.
Open network: Breathing Games and Sensorica
Custodian: CAKE
Exchange firms: non
Communication and coordination
Notes
April 2024
Submitting panel at the Canadian Science Policy Center conference #CSPC2024 - see working doc
Engaging intermediary organizations to find support for regulatory approval - see working doc
Tibi engaged Qortal community to test if platform is suitable for safe and secure data management
Starting February 2024
Bringing the electronic sensor up to ISO standards and applying cryptography and blockchain to establish trust in distributed fabrication of open source DIY artifacts - towards regulatory approval.
Inven_T application draft
April 2024 to October 2026
Adhesion study 50 young people at home over 6 months ethics 6 months + recruitment and co-creation 12 months + study 10 months + analysis 2 months. Can patients play at home on their computer with the controller? Term Adherence Assessment (Lung Function) 15 (20%) → 50 (66%) of the 75 children with mucosa at SJ (60% have PEP) patient follow-up in hospital at baseline, at three and six months.
Development: Device improvement, game jams every two months from April 2024, internships to create PEP games.
September 2023 to Mars 2024
Pilot study on acceptability: 15 children in the clinic (two meetings) 2nd demo from August 22 over eight weeks 3rd demo early January 2024 (pre-test at home with tablet and Bluetooth?) Publications Item sensor Autumn: preliminary results following ethical validation? Protocol?
Iterative development: game environment, modular game platform meta universe with age-related sectors PEP pilot game: spaceship quest with space travel - controller rewards pilot game: construction (three versions),
Sept 22-24 2003
OPN digital privacy and security hackathon at Sensorica Lab. Prepare for BG game and device regulatory approval process.
August 2023: paper and funding
writing grant proposal to advance the project - open to participation!
writing paper on spring 2023 experiments at Sainte Justine.
May to July 2023: Preliminary clinical observation with 15 children at Sainte Justine Hospital.
Fabrication of 15 new prototypes (DIY manual and R&D doc), game improvement
Study:
Pre-gaming questionnaire for children: habits, adherence to treatment
Demo and test of the games and device: advance cars - contemplative spaceship - mouse particle effect - keyboard gardening - mouse and keyboard
Post-game response children and parents separately: feedback
Breathing Games prototype, model B (organic box)
Made at the Sensorica lab in Montreal.
Resources
| Source Code | Videos | Pictures | Full documentation |
Governance
VENTURES under this COMMUNITY follow the OPEN VALUE NETWORK model's governance.
VENTURES are COLLABORATIVE, TRANSPARENT (anyone has access to the information that they produce) and OPEN (anyone can participate). They only produce things based on OPEN SOURCE technology. Ventures have a CUSTODIAN that represents them legally and acts as a trust for their tangible assets. Ventures can have multiple EXCHANGE FIRMS, which are commercial entities that move products and services developed by Ventures on the MARKET.
EXCHANGE FIRMS oblige themselves by contract with the CUSTODIAN to share PROFIT with all contributors to Ventures, from which they commercialize PRODUCTS.
Agreements
CUSTODIAN Agreement [provide link]
EXCHANGE FIRM Agreement [provide link]
Project Governance Template [provide link]
See the Governance page for network-level and project-level governance and governance templates documents.
Hardware prototyping
Lift16 Health GameJam
Game jam OpenGeneva 2019
Contributions accounting and spending for the build 2023 initiative
Spending on materials