Open Innovation Saves Lives: Decentralized Solutions for Cystic Fibrosis Therapy
We create open source DIY hardware and software for cystic fibrosis therapy.
We collaborate with Sainte Justine Children's Hospital in Montreal, where these solutions are tested with patients.
We are approaching Health Canada for approving this open source DIY solution as a medical device.
Open network: Breathing Games & Sensorica
Custodian: Ludociels pour tous
Exchange firms: non
Communication and coordination
Messaging: Sensorica Discord | BG Discord
Social media: YouTube | Twitter | Instagram | Facebook | LinkedIn
Other website: breathinggames.net
Notes
January 2025 - web3 funding efforts, open doc.
Dec 8 - fabrication of 20 new pressure sensor devices finished and delivered to Sainte Justine Hospital.
Oct 23 - all materials ordered for fabrication, see BOM.
Oct 19 - GameJam at Sainte Justine.
September 5 - All stakeholders have signed the agreement / contract for the PEP Master project, giving the ability to access the grant from the Sainte Justine Hospital.
June 2024 - Meeting of all Parties at Sainte Justine Hospital to formalize the collaboration for the Inven_T grant / project.
May 2024
May 17, meeting with Axelys, to understand their open science and innovation policy and see if we can collaborate on regulatory approval.
We were awarded a $100K Inven_T grant for the project.
April 2024
Submitting panel at the Canadian Science Policy Center conference #CSPC2024 - see working doc
Poster: Serious game-based positive expiratory pressure (PEP) respiratory physiotherapy in children with Cystic Fibrosis: a prospective pilot study on acceptability and co-creation. Congrès Canadien sur la Santé Respiratoire à Toronto le 12 avril 2024
Engaging intermediary organizations to find support for regulatory approval - see working doc
Tibi engaged Qortal community to test if platform is suitable for safe and secure data management
Starting February 2024
Bringing the electronic sensor up to ISO standards and applying cryptography and blockchain to establish trust in distributed fabrication of open source DIY artifacts - towards regulatory approval.
Inven_T application grant proposal - Awarded in March 2024.
Orientation
Resources
| Source Code | Videos | Pictures | Code | Full documentation | Scientific communications |Inventory
Download full .skp model
You can open it in sketchup (it's free) and export other formats
Download STL files for bottom part, Middle part (base and optical fiber holder) and Top part.
Governance
VENTURES under this COMMUNITY follow the OPEN VALUE NETWORK model's governance.
VENTURES are COLLABORATIVE, TRANSPARENT (anyone has access to the information that they produce) and OPEN (anyone can participate). They only produce things based on OPEN SOURCE technology. Ventures have a CUSTODIAN that represents them legally and acts as a trust for their tangible assets. Ventures can have multiple EXCHANGE FIRMS, which are commercial entities that move products and services developed by Ventures on the MARKET.
EXCHANGE FIRMS oblige themselves by contract with the CUSTODIAN to share PROFIT with all contributors to Ventures, from which they commercialize PRODUCTS.
Agreements
EXCHANGE FIRM Agreement [provide link] - does not apply
See the Governance page for network-level and project-level governance and governance templates documents.
Planning
| Contributions (NRP-CAS) | Calendar | Decisions | - Log Contributions
Sebastian starting to produce a short promotional video about Breathing Games
Mayssam and Tibi are developing Capacity for the venture (funding and partnerships)
Continue developing thermal forming method for fabrication of boxes.
Contributions accounting and spending
Budgeting and Spending on Labour
Purchase of materials
Contributors roles and tasks
Tasks and roles
Did you know?
You can launch your own venture, see how.